Where the focus lies

 I read an interesting blog from someone else talking about chronic illness, saying that perhaps this Coronavirus is giving those without sickness a view of what life is like for us, those who are fighting to stay alive. 

 The daily not knowing.

 The “realness” of life.

 I don’t think Coronavirus has affected me much, emotionally. Fear, and the fight against it, is a daily thing for me. I have been fighting against diseases that want to kill me for my whole life. I have packed my husband up and sent him off to jump out of planes and be prepared to not come home for nearly 20 years. Covid 19 truly hasn’t been anything. 

No, the past has prepared me for fighting already. 

 I wrote this following paragraph, a quick jotting down of my feelings in the notes section of my phone, in October of last year in the middle of a really bad blood sugar day. It isn’t the first time I have felt it, and I doubt it will be the last.

 I am tired. Tired of fighting. Tired of trying. When someone has cancer they are allowed to just quit. It is almost seen as admirable and honorable. I am not allowed to just stop taking meds and let the disease finish it’s run. Diabetes and epilepsy are both ones you are supposed to beat. Or at least fight. What if I don’t want to? What about when I am tired of fighting, just to stay alive. 

 Please Lord, give me some energy to keep fighting. One minute at a time.

 I remember that soon after Joey Feek passed away her husband released a film showing the journey of their last years, their last joys, their last battles. To Joey, with love. We watched it soon after it was on video and I had to admit to Andy that I truly was jealous of her. She got to go home. She was able to be free, to be done with the fight. 

 He didn’t like hearing that, obviously, and looking back I can understand his reaction... and that is why I am unsure of how to post this here. I need you all to understand that this isn’t depression. This isn’t a death wish. This isn’t me being suicidal. This is just honesty: there are moments when having to fight my WHOLE LIFE to stay alive gets exhausting. Exhausting like running a marathon. Like birthing a child. Like fighting a war. 
 You are tired, both mentally and physically. You don’t truly want to quit. You have things you are looking forward to; finishing the race, holding that baby, winning the battle. But sometimes in the middle of it all you are just so tired that you almost forget how to breath. That is life with multiple diseases.  
 I think that Louisa May Alcott said it so beautifully, describing Beth’s last days in Little Women,
 "...to make her forget the mortal weariness that was almost as hard to bear as pain." 

Mortal weariness sums it up. Just so very tired. Two seizures, a blood sugar of 355 and one of 42, all in 48 hours is enough to make you just so..very... tired...

 A couple days ago when the sun was shining and the birds were singing and I was pulling weeds and enjoying flowers and finding tomatoes already starting to show their beautiful selves, well, the tired wasn’t as heavy, it wasn’t as tiring. 

 Tomatoes, peeking out!

Just a spot of beauty

 I am not always exhausted. Not always. 

 But since March was so ugly and I am “at risk” with a compromised immune system and don’t want to end up needing the ER because of an over abundance of seizures, my neurologist has put me back on another (of my old) seizure meds (in addition to my current one). So, I am in that lovely stage of working my way up in dosage, slowly adjusting to the exhaustion then adding another pill so I can be even more exhausted again. 

 It has been a rough couple weeks, emotionally and physically. It would have been, even if there hadn’t been multiple deaths across the country from a disease that we don’t understand. That’s the thing- my body is always failing.

 I am always, always, choosing to fight to stay alive. 

 Choosing to have joy, or not. 

 Choosing to see the tomato plant and rejoice, or not. 

 Choosing to pull the weeds knowing they will return again tomorrow, but to pull them anyway, or not.

 I need you to understand that this is a choice I make. 

 Every day. 

 It is never easy. 

 Sometimes it is not as hard, but it is never easy. 

 But here is the thing... I think that, unlike what the blog I read earlier and my own selfish moments want to insinuate, so are you. We all struggle. Everyone. Every day. 

 Pain. Fear. Anger. Exhaustion. 

 Different amounts. Different levels. Different reasons.

 We can all be overwhelmed.

 It is a choice, every day, how we respond. 

 I am not the only one. Perhaps Coronavirus is making things a little stranger or the pain a little stronger for some of you, but this isn’t a brand new thing. 

 It is the same choices as always. 

 So, please my friends, choose JOY! 

Can you see the difference between those two nearly identical pictures? 

Where was the focus? What was the focus? 

It only took a split second to change, to make the choice where to focus my attention. 

We can focus on the thorns on we can focus on the flowers. 

That is the choice, over and over. 

I am positive that we will fail at times and only see the thorns. 

Then we get to blink, and refocus again. 

Make a different choice the next time. 

In the middle of writing this, in the middle of discussing with Andy the beauty of focusing on the rose instead of the thorn I realized that my life is a rose bush. My thorns -the diabetes, Graves’ disease and epilepsy- are here to stay. But they serve a purpose too. Thorns on a bush offer protection. They are sharp and dangerous and sometimes painful, but they do serve a purpose. My thorns do too, if I pay attention. If I remember to notice. The places I have been and the people I have met because of my thorns. The places I have not been and the people I have not met because of my thorns.

 These thorns at times exhaust me. 

 Truthfully though, they make me who I am and I will choose to celebrate them. I will choose to celebrate the sometimes overwhelming but always beautiful rose bush of my life. 

See the roses, and the thorns. 

Enjoy the beauty and the strength.

 Be blessed my friends, in the choices. 

 Be aware of them, time after time. 

 Make the right ones, exhausting time after exhausting time.